All systems are GO....I picked up all the tickets for Disney today...along with the itinerary... We leave in 12 days!! YAHOO!..... All of the scans have now been assigned a date and time...along with the consultation with the bone marrow team...along with Dr. appointments...We will have a very busy May...Going to Doctor appointments and testing at least twice a week....but that is A-OK because we can do that from the comfort of home....we can do that ALL after Disney and meet each challenge after a much needed free time....
All the news is good for what we had hoped for in respect to how we would like things to be handled. Although Michael is not thrilled with having to go through more tests...not thrilled with dealing with different Doctors...he knows it is necessary to find out if anything more can be done for him....This is the only option left....I am still not sure what his decision will be regarding the bone marrow transplant if he is a candidate....He is tired...some days more so then others....So I wait, patiently for him to make that decision for himself....I can give my views...I can voice my opinion...but ultimately it is his decision to make....
For now....I am happy that we are going to be getting away with our little love....and that I do not have to travel to Memphis for any tests.
rambles from the shadow side of life...About living...about living with dying....This is where my heart will pour forth...this is where my shadow will be exposed...this is where I will cry...where I will laugh...where I will become one with that shadow of life...
4 comments:
Ah, to Disney with your 2 beloved ones. We took our little one a year and 1/2 ago, and it was the trip of a lifetime for all 3 of us. We LOVED every second, and I know you will too!
Peace, Comfort, Love and FUN!
To you,
Sheila
Oh Pattie, have a wonderfully fun trip. And remember to build in quiet time to help you digest it all! Just thinking about this makes me smile.
Love, Linda
You must be getting soooo excited about your trip!! I am excited for you and wish you the best time ever!
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