A moment of peace....
Thank you to all who have written here and off line to bring me support and a personal cheering section....
I have NOT been doing the IV....Michael was given 6 day and 6 night visits with a nurse...and the Doctors determined that he would need 6 more treatments....I could not see the purpose of doing it as long as a nurse was here....So, I stay out of the way...If Michael was going to have to be on meds done by IV long term, certainly I would of learned how to...but not this time....
We went for a follow up check up today...and they want to take the picc line out of his arm as soon as the IV is completed...So we will be going Thursday morning to do that...they do not want one pesky little bacteria that may or may not be still around to have anything to attack....and then we will start to get back on track....
I will have to reschedule all the appointments I had to cancel during his 10 day hospital stay...and the remaining 6 days of IV's....I am going to give both of us a week off to unwind from all of this...to try to settle into something "normal" ...to regroup....and then starting the week of the 15th I hope to have the appointments set up to begin the pre-testing for the bone marrow approval....Hoping that the resting period that his body is in will hold for another couple months...there is no guarentee...it could be longer than that ...it could be shorter than that...I think that is the hardest part of it...the not knowing....some days you just wish someone could give you answers....
Thank you all again....for your support....I couldn't get through this without YOU!
rambles from the shadow side of life...About living...about living with dying....This is where my heart will pour forth...this is where my shadow will be exposed...this is where I will cry...where I will laugh...where I will become one with that shadow of life...
3 comments:
Oh, Patricia.... how strong you are! The past few weeks have been, well, complicated here and I've been lax in leaving notes. But I've been checking in and you and Michael are never far from my thoughts and always in my prayers.
Hugs,
Barb
Oh Pattie--
Thank you for keeping us updated on your life--so that we may all send love and light to you both! I am so glad that you have nurses......I know that has to be a relief for you.
Love to you both,
bb
Dear Pattie:
Each day brings small things that can be known and changed...the BIG PICTURE is never quite revealed. Wise folks have often said to live a day at a time and now I understand the wisdom in that.
Our son has given us the example of putting JOY in his life dispite the unknown...what else can he do? How can we do any less?
Giving yourself and Michael a week of rest is good, taking Michael and your grandson to Disney World was an amazing gift of joy on your part.
After accompanying Dan for more than three years on this journey, all I can say that he is here and he is very present in his children's lives.
The doctors and the books have not held any answers as to longivity and the prognosis for the future, so we pray and are grateful for one more day.
May I share a JOY we recently experienced with our son; it has filled us up for a week. Dan is a marine biologist and has not been able to dive since his diagnosis, three years ago, his doctors finally gave him permission to dive in salt water! Well, wouldn't you know there was no one available to go diving and he needs a partner. He said I've got to go now because who knows when the docs will change their minds. He called the Georgia Aquarium and they made arrangements for him to dive in their largest tank (actually the largest tank in the world) with the whale sharks. He said it was the BEST dive he had ever been on and his kids were able to watch!!! WOW, we're still on a high.
We are praying for you and Michael each day. I'm glad they're taking the pic line out of his arm, those d#*@ lines are always risky, but sometimes necessary.
Keep on keeping on...
Pat
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